The Impact of a Recovery Program on the Mental Health Outcomes of Intensive Care Unit (ICU) Survivors: An Intervention Study
Those who experience a critical illness/ event requiring admission to an intensive care unit frequently experience physical and psychological complications as a direct result of their critical illness/ event and intensive care unit experience. Complications, if left untreated, can affect the quality of life of survivors and impact upon health care resources. Explorations of potential interventions to reduce the negative impact of an intensive care unit experience have failed to establish an evidence based intervention.
The aim of this study is to evaluate the impact of a web based intensive care recovery program on the mental well-being of intensive care survivors and to determine if it is a cost effective approach.
One hundred and sixty-two patients that survived an intensive care unit experience will be recruited and randomised into one of two groups. The intervention group will receive access to the web based intensive care recovery program, ICUTogether, two weeks after discharge (n=81) and the control group will receive usual care (n=81). The ICUTogether web based platform will provide information about health and wellbeing during recovery and advice about exercise, sleep and nutrition in this population. It will also provide information on the recovery process and how to seek professional help. Mental well-being will be measured using the Hospital Anxiety and Depression Scale, The Impact of Events Scale-Revised and the EQ-5D at three time points (2 weeks, 6 months and 12 months post discharge). Analysis will be conducted on an intention to treat basis using regression modelling. Covariates will include baseline outcome measures, study allocation (intervention or control), age, gender, length of intensive care unit stay, Apache III score, level of family support and hospital readmissions. Participants’ evaluation of the mobile website will also be sought at 12 months post discharge. A cost utility analysis at 12 months will be conducted from a societal perspective and will include costs incurred by individuals as well as health care providers.
This study will evaluate a novel intervention in a group of intensive care unit survivors. The findings from this study will inform a larger study and the wider debate about an appropriate intervention in this population.
Prescription for Life: An Interactive Educational Resource
A diagnosis of Younger Onset Dementia (YOD) requires specific care tailored to the individual and the family. Dementia care workers often do not have the skills and experience necessary to offer this care within the residential and community environment. The production of a technical resource providing integrated information and facilitating access to training for dementia care workers of people with YOD, would create a flexible and accessible learning package. This interactive resource would accommodate patient’s desires to individually tailored, customer centred services, while providing a central point of information for dementia care workers currently navigating numerous systems.
To implement a cost effective educational resource to increase knowledge and improve care for staff caring for those with YOD as well as to challenge dementia care worker’s attitudes and encourage a wellness approach in YOD care.
The project consists of four phases: First the development of a training needs analysis through an expert panel, and a survey of participants with the training needs analysis. Second, identification of pilot sites, and complete version one of the resource. Third, pilot version one at the selected pilot sites and analyse the data from the surveys, and finally, rollout the final version of the resource as a publicly available tool. The final educational resource consists of an interactive electronic book that can be accessed by any care provider of those living with YOD. Ongoing quantitative research consisting of a qualtrics survey embedded in the educational resource will enable data to be collected following implementation of the resource.
An interactive educational resource was collaboratively developed by university and clinical personnel for employed carers of persons living with younger onset dementia (YOD) cared for in the home and residential setting. The resource contains video links, audios from experts in the field and offers a wellbeing approach to YOD care. The final product “Prescription for Life” is now available as an online resource nationally and internationally. A paper on the implementation has been accepted for publication in Dementia: The International Journal of Social Research and Practice (Nov 2017).
Access the toolkit: www.lovellfoundation.com.au/ebook/